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Passion Project | Toddler with HLHS |Olivia

Sweet three-year-old Olivia knows more about hospitals, medicine, pace makers  and oxygen than most adults. She just completed her third open heart surgery.

“Andrew and Sarah were anxiously awaiting the birth of their second child, and went in for the ultrasound to find out the gender. They found out they were having another girl and we’re excited but they also left the ultrasound with trepidation. Something was possibly wrong with their baby and they had to schedule an ultrasound at primary children’s. Well, it turned out that the babe, Olivia, was diagnosed with HLHS (Hyposplastic left heart syndrome) so basically half of her heart wasn’t developing.”

“They knew they wanted to fight for their baby and so they immediately started researching more, and figuring out what their lives would be like.”

“For HLHS there are three main open heart surgeries that the babies/kids have to go through. One when they are about a week old, one when they are about a year, and an other when they are about three. Livie is a stubborn one and has done well with her two surgeries with some setbacks a long they way. She is “broken” and yet she is beautiful and has so much strength. It hasn’t been easy and won’t be easy but her parents and older sister have handled their part of the trial well too.”  – Passion Project Nomination from Olivia’s Aunt Cynthia
Olivia is full of so much strength and beauty. I loved listening to her sweet voice tell me all about the hospital, her medicine and all her new gifts.  She is one brave three-year-old.

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PASSION PROJECT | “THE STRUGGLE IS PART OF THE STORY”

I am a storyteller with a passion for documenting life. The good and the bad. My Passion Project is meant to provide individuals and families with memories. Photos that they can look back on, share and inspire others with. My goal is to turn hard trials into beautiful stories of strength, filled with all the raw emotions.

 

September 24, 2015

Kylee Maughan

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